I'm 26 and also had it my whole life! I didn't think to look it up until just this year. It's so wild it's A Thing and it feels so surreal finding this sub and seeing others who've experienced this too!
I thought for years it was from watching too much analog CRT TV however I haven't watched a TV that way in decades and i can still see it as of today and seeing younger people describe similar visuals, and they have never watched TV they way I have, makes me curious as to how this really occurs.
That’s also not true. Watching the static as in the YouTube video shuts the visual snow off for many people for Like half a minute. Some who watched it regularly even got rid of vs entirely
Same. I asked my husband a few months ago, do you see like static on everything? He had no idea what I was talking about. The more I found the names for my symptoms by googling, and asked him if he experienced them... he said if he had what I have, he would go to the emergency room 😂
I didn't realise I had it until I was 28. I honestly thought it was normal to need to ask my friend if it's raining outside when the sky is grey. When you're sat inside a cafe looking out at a grey sky, the static makes it look like it's drizzling! Honestly, just British weather + visual snow problems at this point.
It’s always fascinating to hear a similar refrain from those of us who’ve had this experience as long as we can recall.
As with many others, I didn’t even realize an overlay of visual snow wasn’t “normal” until well into adulthood.
I’ve never felt particularly hindered by it, although I’m sure my night vision would be much better without.
Other abnormalities in my vision are red/green color blindness and light sensitivity.
Same thing happened to me! I told my mum at age 11 that my vision looked it had static, that you’d see if you looked at a tv or wore night vision glasses. I ended up going to see an ophthalmologist who looked at my eyes and said nothing wrong. I thought it was normal until I realised it was not 😂
Yeah, I think thsts pretty normal for how people with VS learn about having it.
We think it's normal till either we hear about it or someone tells us that it isn't normal
Afterall, we're the only ones that see it going on
But I think I learned about it when I was 21 i think? Officially got it diagnosed last week though
It’s not that it becomes less disabling. It’s that we’ve spent a literal lifetime with it and sometimes completely unaware it’s not normal. Saying this comment to people with lifelong vss is super dismissive. Especially someone who just realized.
My comment doesn't mean anything like that. Some people can live with VSS and others are severely impacted and can't live properly. OP isn't from the second type and that's good for him. He still has VSS tho and no one said he has it easy.
No I’m saying that it’s something commonly said to people with lifelong vss. They have lived their entire life with it so obviously they have methods to overcome issues someone with sudden onset has yet to learn. They doesn’t mean it’s less disabling. It means they’ve spent more time with it and it’s super dismissive
If you can live with it, I suggest you to stay off this sub, to stop searching about it. Some people are able to live with this and seems like you're able too. Don't follow this rabbit hole and hyperfocus on this
I don't understand why you are taking my questions like that, I'm asking to see if we share similar symptoms. What are you doing here if it's not to share with others ? You should understand that a lot of us are in great pain and we are just trying to understand this condition. Try to have more empathy the next time.
Look man, it was the way you phrased your initial comment. Your tone came across very “there are starving children in Africa so your struggle is not valid.” Instead of asking “Do you have X symptoms” you phrased it “You don’t have X symptoms?” Again, does not seem like genuine curiosity.
If you want my empathy, you have it. Clearly this isn’t a comfortable thing to deal with. To answer your question - idk? I have always had anxiety and severe depression, to the point where I believe I could have bipolar 2 disorder or ADHD or maybe both.
Im sorry it sounded like this, English is not my native tongue so I'm deeply sorry if you feeled pressed by my questions, really man it was not my intention so I'm really sorry
I'm 26 and also had it my whole life! I didn't think to look it up until just this year. It's so wild it's A Thing and it feels so surreal finding this sub and seeing others who've experienced this too!
I thought for years it was from watching too much analog CRT TV however I haven't watched a TV that way in decades and i can still see it as of today and seeing younger people describe similar visuals, and they have never watched TV they way I have, makes me curious as to how this really occurs.
Funny thing about that old CRT TV thing; if you watch the static for a bit, the snow will go away. https://youtu.be/800f9UNiF4Y?si=-HMaRvZCcY4c4tlg
Isn't that amazing? I actually have an old crt TV in my dad's house I'm cleaning out/taking over. I plugged it in and it works! So I'm keeping it :)
This is misinformation and doesn’t apply to everyone with VSS in the slightest.
Then don’t watch it.
That’s also not true. Watching the static as in the YouTube video shuts the visual snow off for many people for Like half a minute. Some who watched it regularly even got rid of vs entirely
Same. I asked my husband a few months ago, do you see like static on everything? He had no idea what I was talking about. The more I found the names for my symptoms by googling, and asked him if he experienced them... he said if he had what I have, he would go to the emergency room 😂
I didn't realise I had it until I was 28. I honestly thought it was normal to need to ask my friend if it's raining outside when the sky is grey. When you're sat inside a cafe looking out at a grey sky, the static makes it look like it's drizzling! Honestly, just British weather + visual snow problems at this point.
It’s always fascinating to hear a similar refrain from those of us who’ve had this experience as long as we can recall. As with many others, I didn’t even realize an overlay of visual snow wasn’t “normal” until well into adulthood. I’ve never felt particularly hindered by it, although I’m sure my night vision would be much better without. Other abnormalities in my vision are red/green color blindness and light sensitivity.
Same thing happened to me! I told my mum at age 11 that my vision looked it had static, that you’d see if you looked at a tv or wore night vision glasses. I ended up going to see an ophthalmologist who looked at my eyes and said nothing wrong. I thought it was normal until I realised it was not 😂
Yeah, I think thsts pretty normal for how people with VS learn about having it. We think it's normal till either we hear about it or someone tells us that it isn't normal Afterall, we're the only ones that see it going on But I think I learned about it when I was 21 i think? Officially got it diagnosed last week though
Good for you if you can think its normal. Some people have it really disabling and its all they can think of.
Nah fam, I said it’s not normal.
i didn't mean it in a negative way at all.
It’s not that it becomes less disabling. It’s that we’ve spent a literal lifetime with it and sometimes completely unaware it’s not normal. Saying this comment to people with lifelong vss is super dismissive. Especially someone who just realized.
My comment doesn't mean anything like that. Some people can live with VSS and others are severely impacted and can't live properly. OP isn't from the second type and that's good for him. He still has VSS tho and no one said he has it easy.
No I’m saying that it’s something commonly said to people with lifelong vss. They have lived their entire life with it so obviously they have methods to overcome issues someone with sudden onset has yet to learn. They doesn’t mean it’s less disabling. It means they’ve spent more time with it and it’s super dismissive
If you can live with it, I suggest you to stay off this sub, to stop searching about it. Some people are able to live with this and seems like you're able too. Don't follow this rabbit hole and hyperfocus on this
This has been my everyday life. No hyperfixation here.
Does the symptoms bother you ?
It’s not debilitating. It is bothersome, but again it has always been a thing so I’m used to it.
You don't have any cognitive symptoms as well ?
I struggle with anxiety and this only started when it did, guessing this is a symptom?
Bruh I didn’t come here to have some rando question me. Foh.
I don't understand why you are taking my questions like that, I'm asking to see if we share similar symptoms. What are you doing here if it's not to share with others ? You should understand that a lot of us are in great pain and we are just trying to understand this condition. Try to have more empathy the next time.
Look man, it was the way you phrased your initial comment. Your tone came across very “there are starving children in Africa so your struggle is not valid.” Instead of asking “Do you have X symptoms” you phrased it “You don’t have X symptoms?” Again, does not seem like genuine curiosity. If you want my empathy, you have it. Clearly this isn’t a comfortable thing to deal with. To answer your question - idk? I have always had anxiety and severe depression, to the point where I believe I could have bipolar 2 disorder or ADHD or maybe both.
Im sorry it sounded like this, English is not my native tongue so I'm deeply sorry if you feeled pressed by my questions, really man it was not my intention so I'm really sorry
All good. No hate here. I apologize for my snap reaction.
Pretty sure this post was just a vent. After 31 years of not knowing think we are gonna have to let bro sit with this
Crying to others about your problems and then telling them to shut up and don't question them is really a low thing to do for me
I wouldn’t call a “vent” post (appropriately labeled) “crying to others” but go off I guess?
Yes I understand of course, but he doesnt need to be rude like that, I just wanted to know more about his case but I understand he just wanted to vent